I am Allison Gamblin, a student at University of Maryland, College Park. I am also a disability advocate with PNES, Dissociative Identity Disorder, PTSD, and other interesting things.
PNES is not very often understood and it is more often then not seen, by many in the medical community, as an attention seeking device. Many in the disabled community have had very negative encounters with medical staff who have never heard of this condition. Worse still, they do not recognize that their actions to "force" patients to stop "pretending to seize" will in fact cause more trauma, escalating the condition in many situations.
The goal of this site is to help increase awareness and bring resources, both for patients and medical personnel, together into one easy to find resource.