Psychogenic Non-Epileptic Seizures
Psychogenic Non-Epileptic Seizures are a little known disorder that are slowly becoming more understood by both medical and disabled communities alike. This web page is organized to help both communities familiarize themselves with the basics of what is known about the disorder and point to further research and community.
That's right. PNES is not actually epileptic. That means that you will go through most of the same tests as an epilepsy patient, but the neurologist will not find the same electrical signals in your brain.
"PNES are attacks that may look like epileptic seizures but are not caused by abnormal brain electrical discharges. Instead, they are a manifestation of psychological distress. PNES are not a unique disorder but are a specific type of a larger group of psychiatric conditions that manifest as physical symptoms (The Truth about Psychogenic Nonepileptic Seizures) . "
If you have just recently been diagnosed, you may feel like you are searching for people who understand what you are going through. The disability community is there to support and help you as you try to process, progress, and move through all the new aspects of your life. Here are some resources for you to consider: